Wednesday, May 2, 2012

Counting the days...

I don't have a lot to post right now... we are just waiting for the next MRI. I did find out yesterday that her neurologist did order the CINE MRI along with the full spinal MRI. The CINE measures the spinal fluid flow. Also, I was able to get her MRI pushed up to May 29th... only a few days earlier...but I will take it!
Kaylie has had a bad couple of days. Yesterday bad headaches and ear pain. She ended up sleeping with me, and waking up in the middle of the night with a headache. Today, more headaches, ear pain, back of the head/neck pain and she is defiantly having the ringing in her ears. She stopped in the middle of dinner tonight, telling me she hears, "nnnnnnnn"and described it as a long line. I gave her naproxen tonight, heating pad... then a warm bath. Then she went to bed. When I can just get her to go to sleep... I think they go away, but I'm not sure on that, because she does wake up with them. Seems like we will have a row of bad days... then some good days.... so hopefully the good ones are almost here!

On a different note... Our good friends Heather & Travis had awareness bracelets made. They are purple, and say, "Hanging with Kaylie". They are fundraising with them. Ben & I have been so overwhelmed with all the support... from cheer post cards, donations, to prayers. It means so much to us! And we are just amazed at the community we live in.... we are truly blessed to live where we do. I know we say this all the time... but we can't "Thank" everyone enough! I also added a Facebook button to the blog... so if you would like to follow her on there too!


  1. How can I get a bracelet? Lisa C.

  2. Hi Lisa... I believe the bracelets our friends had made are sold out. I did order some too. I should get that shipment May 10th... I will then let everyone know I have them. Thanks for wanting one!