It has been a great weekend! Kaylie hasn't had a fever since Thur. evening, her throat looks 100% better, and her pediatrician texted me today to let me know that her mono titers were negative! Just a bad, bad bug! She has been feeling a lot better lately. She has been playing a lot in her room with barbies, calico critters.. what not, not really running around... but not laying around either. I have to remind her to take it easy. There has been a couple evenings she has had small headaches. Nothing like what she use to have. But, this is normal recovery for all this. A couple of her bottom steri strips and a middle one have come off. So far her incision looks really good! All of them are really loose, so probably this coming week more will be coming off. I saw this pic on Pinterest.... couldn't be any more fitting!
I'm going to start working on a new section for this blog... "Related Conditions". There are a lot of other conditions that can go along with or cause Chiari. Kaylie just has Chiari, and Mason just Basilar Invagination. But since I have other come to this blog... I thought it would be helpful. It will probably take me some time to get it all up.