We all had teams we were walking for, and took team photos
|From left to right:|
Liz, Daniel, Dad, Mom, Abby, Kaylie, Mason, Ben
Me, Sabrina, & Matt
Hi, my name is Amber Barnes. My 6yr old daughter was diagnosed with Chiari 1 Malformation this past March. Like most chiari patients, she suffered from a slew of symptoms, but her big 3 were daily headaches, ear and eye pain. After much research, and finding the right neurosurgeon for our family, she went through Posterior Fossa Decompression, Duraplasty, and a C1 Laminectomy. A world of emotions changed our lives forever, the day we found out about Kaylie. But that same day, I told myself I would not let Chiari conquer us, we would conquer chiari!
We will Conquer Chiari. As we stand here today as passionate patients, parents, siblings, grandparents and other family & friends, we will push the awareness that is needed. We will raise money for research and we will better educate our medical community. I thank god everyday that I found this great group of people in Oklahoma, every one of you means the world to me. Thanks for your support.
In all it was great, I met a lot of new friends, and friends from my FB groups. There was over 300 participants, and they raised over 10K. Amazing. Jenna, Stephanie, and Karen did a great job coordinating the event. Way to go ladies! I want to thank my family for coming out, it means the world to me!!! Much love to you all!