Saturday, December 15, 2012


Kaylie hit 5 months post op yesterday. The day started out ok... when I picked her up from school, she had a headache. I kind of blew it off... thinking it was weather related, because Ben had a headache too yesterday. We had plans to go out with friends last night, and by the time we were headed out the door, she still had a headache. I gave her Naproxen. An hour later she still had it, but seemed to be doing ok, because she was having fun with Abby & her friend. The night went on, things were good... till on the way home. Meltdown. Not too bad of one, but it had me a little worried.
Today she started to have another bad headache... in the front & back of her head. At one point she complained her ears hurt, and her neck hurt. She didn't want to take anything... so I let her be, finally around 3pm, with her acting like it was worse I made her take some Motrin, and go lay down in my bedroom with a heating pad. It seems to have help a little, but hasn't taken the headache all away. 

Since surgery Kay has done A Lot better. She will occasionally get small headaches... which I say are always due to weather... but nothing like she use too. Since we had met Dr. Rekate back in June, I had stopped keeping track of all her symptoms... just because she was having surgery... I felt it wasn't needed. The first time she had a headache after surgery... I thought to myself I really needed to keep track of when things happen, just to be on the safe side.... I keep putting it off. I don't know why, because its as easy as writing it down on a piece of paper. I think I am scared to keep track of it. Every time we have one of these days... I find myself panicking that things are going to start to go down hill, or was it really ok to register for that class. I am kind of scared to plan things out... not knowing how things will be. I know I should say everything is going to be fine.... but there is just that part of me that is uneasy about things. 
I asked some friends on FB about what they used to track symptoms. I use to have a binder that I kept, ... I guess like a symptom diary. But I wanted this time, something that would graph out... so I could see  the distance between each episode. I found this app for iphone, iPad, and itouch. Its called Health Manger... it was like $3.99. I started it today, I can add in symptoms, track medications given, notes, then it will show you graphs ... and I can even import/export the info. I'm going to try this for Kay & Ben. 

Anyways...besides that today is kind of a bummer day... things have been good. I think i just worry about the future. 
To those that got on my blog today looking for Elfy... I just sat her in the tree today. I kind of wasn't in the mood last night, for anything crazy. Yesterday was an emotional day for the US. Our thoughts & prayers go out to all the families in CT. With having three young kids, two of them in school... I can't imagine going through that.

UPDATE (9pm).... So Kaylie has a fever! I guess she is coming down with something. All of my chiari friends have reminded me that headaches are much worse when sick... hopefully she will get better before xmas!

No comments:

Post a Comment